View Full Version : Anyone here with IC?
Mysty
02-06-2006, 02:20 AM
Well here it is 5:18am and I am still awake! A lotta pain tonight and me with a new job that I am supposed to be at in less than 3 hours. I am not a happy girl :( :mad: :(
lalarainbow
02-07-2006, 06:56 PM
Hey Misty,
Funny we both found this sight...We have not seen you on the Canadian ic chat.. It is going to be Wed this week..
I had an email from Hystersisters telling me about this site.. I have been doing good IC wise.. I have bad days but they don't last too long.. Frequency - well I live with it.. not much works..Hope you feel better soon.. I hate flares..
Take care
Pam
Mysty
02-07-2006, 07:00 PM
Hi Pam.... I will try and get there tomorrow night for sure. I ended up in the hospital after that post. They tell me that along with IC I also have diverticulitis. OH Great!!!! Anyway on antibiotics now.. cross ur fingers! My patience are toast.
Helen
futurekidnurse
02-28-2006, 04:26 PM
Excuse my stupidity but may I ask what IC is?
Tally
lalarainbow
02-28-2006, 04:35 PM
Hi
IC stands for Interstitial Cystitis.. It is a chronic disease of the bladder..there is no cure and only can treat the symptoms.
It is an inflamation of the lining of the bladder that can not be helped by antibiotics..Symptoms are like a really bad Urinary tract bladder infection --- burning, severe pain. frequency, urgency.. It can be aggrevated by diet.. IE spicy foods, acidy foods,alcohol and stress or sometimes for no reason at all..
to find out more go to http://www.ic-network.com
~~Pam~~
LuvMaui
05-31-2008, 04:08 PM
I have IC. I've had it since my Hysterectomy 2 years ago.
It's been a challange trying to find a treatment that helps.
Anyone else on GGG have this condition?
Mykhal Jaems
05-31-2008, 09:35 PM
No but I do have diverticulitis (haven't had a flare in a couple years). So long as I stay regular I am fine. I never thought that pooping would be something I think about so much! Now I'm very careful about things that will plug me up (cheese mostly!).
Poohtie
06-01-2008, 06:08 PM
Hi, Mysty! I don't have IC, but have experienced chronic pain in my life and I know how that can be to deal with. God bless you, and comfort you. Please take care and keep us posted!
Tracey.
Chatdecalicot
10-06-2008, 03:06 PM
I've had IC for 5 years (diagnosed) and have been having really bad flares lately. Stress has been super high though and I can't afford Elmiron, and haven't been on it for probably 2 years now. I am on other medications for it, but currently cannot afford one of them right now as well. IC is not a fun thing to have and I'm sorry that you are going through this pain, all of us with IC know exactly how you feel!
:grouphug:
LuvMaui
10-06-2008, 07:47 PM
I've had IC for 5 years (diagnosed) and have been having really bad flares lately. Stress has been super high though and I can't afford Elmiron, and haven't been on it for probably 2 years now. I am on other medications for it, but currently cannot afford one of them right now as well. IC is not a fun thing to have and I'm sorry that you are going through this pain, all of us with IC know exactly how you feel!
:grouphug:
Have you been on the IC network forums? There is a lot of support there.
Sorry you're dealing with IC right now. Knock on wood... I have been doing good for the last couple months :)
Chatdecalicot
10-06-2008, 08:08 PM
Have you been on the IC network forums? There is a lot of support there.
Sorry you're dealing with IC right now. Knock on wood... I have been doing good for the last couple months :)
Thanks! Good to hear you are doing well with your IC! I have been on the IC Network, I think I actually joined when I got diagnosed- very informative boards!
LuvMaui
10-06-2008, 09:50 PM
I know that stress is a major trigger for me.
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